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Up-to-date technologies: An Infertility
Specialist needs to be able to provide state-of-the-art therapies.
What was adequate therapy 5 years ago is probably not acceptabletoday.
This field is changing so quickly that it is important that
you receive the latest and most advanced treatments available
because they will make a difference in outcome. The physician
should be able to review with you all the "breakthroughs"
which are reported. Some are real and others are hype, but
we should always be able to thoughtfully evaluate what's important
and what's not. If something is important, we need to be incorporating
it into our practice.
Access to the physician: It is
absolutely reasonable for you to expect to be seen by your
physician. After all, that's what you're paying for! While
it is sometimes appropriate to be seen by ancillary personnel,
e.g. a phlebotomist on a day when you just need a blood test
or occasionally by an ultrasound technician, it is not reasonable
to be seen only rarely by the physician. It is too easy to
fall through the cracks and get lost in a system where the
patient is seen primarily by ancillary personnel. These situations
are the ones where the patient may be randomly treated, and
the therapeutic interventions seem haphazard and directionless.
Phone calls should be answered the same day, or at the latest
the next day in non-emergent situations. It is not requesting
too much to expect to have contact with your doctor. At ACRM
our physicians strive to provide the daily care and be directly
involved in all phases.
Label experimental procedures as
such: Without research, there would be no progress in
medicine. It is imperative that we try new approaches in medicine.
However, if a patient is being treated in an experimental
fashion, that should be made quite clear to the couple. Furthermore
it is inappropriate to hold out success rates from limited
experimental series as "routine." Sometimes experimental
protocols look great in the initial tests but as more patients
in the "real world" are treated in the same fashion,
the new protocols turn out to be no better than the old ones.
If a physician is carrying out some truly new approach, billing
and reimbursement become an issue. It is unethical to make
a patient and/or their insurance company pay for research.
Research funding exists for this very reason.
Efficiency
It's easier to keep going than to
change courses: Although it's tempting to keep doing the
same old things, that doesn't mean it's right to do so. It's
hard to say to someone that what we're doing is not working.
The medical literature clearly shows that our therapies are
successful quickly if they are going to work at all. Typically
pregnancies are established within 3-6 cycles of therapy.
If a couple has not been successful within this time frame,
it is important to reassess and probably change approaches.
Prolonged treatment with the same approaches may mean that
no one is critically reviewing the data or even scarier, the
motivations for treatment may be ethically questionable. As
a general statement, there is not a reason for carrying out
more than 6 cycles of the same therapy when there hasn't been
any success
Clear, thought out treatment plans
are critical: Along the same lines as the above, it is
obvious that the physician must project out a reasonable appropriate
treatment plan. We find that patients are most comfortable
when they know what we will be doing over the next 3-6 months.
It is not at all unreasonable to expect the physician to make
the working diagnosis completely clear, and the suggested
treatment should make sense. Although a couple does not need
to understand the subtleties of the medical literature, it
should be a bare minimum to expect that a couple can walk
away from the consultation with their physician knowing what
the problem is, what the treatment approach will be and why.
If you can't answer these questions at all times, there is
a problem with your treatment.
Improvements which "increase"
efficiency: Sometimes there are technological improvements
which make an organization run more smoothly and efficiently
and these ultimately help the consumer/customer. An example
of this is ATM machines, which have facilitated banking for
many people. Some innovations such as voice mail can make
life miserable, however. They may make sense for the company,
but they certainly don't help the consumer or customer. Too
many "improvements" in a medical office may be cost
effective for the practice but may make the physician inaccessible
to the patient. There is of course a happy medium. It is not
too much to ask to be able to have your questions answered
quickly, easily and efficiently.
Honesty
Don't ever lie: Patients have
repeatedly told us that they want to hear the truth. If a
procedure is painful, say so. If it is unbearably so, do it
under anesthesia. If something is expensive, don't hide it.
It is unfair to say that a cycle of gonadotropin ovulation
induction costs $1500-2000. The medications may cost that,
but in order to carry out the cycle the patient will need
ultrasounds, blood tests and so on. The cycle as a whole may
end up costing $4000. It is in everyone's best interest to
avoid surprises.
Don't misrepresent success: In
order for a couple to make a decision regarding a given treatment,
they must know the likelihood of success. A given amount of
time, effort and money may be worthwhile for a 60% likelihood
of success but not for a 20% likelihood. In order for a couple
to make these decisions, then, correct data must be available.
Once again, it is in everyone's best interest that we provide
a true assessment of the chances for success. Furthermore,
we should always provide an estimate of the desired end-point,
which is a healthy baby. To focus on fertilization rates,
pregnancies per transfer and other assessments, which ultimately
are not important to the couple, is misleading. To make an
educated decision, a couple needs to know what is the chance
that a given therapy will lead to a baby.
Say it when it's time to stop:
Unfortunately, there will be some couples who will not be
able to get pregnant. As physicians, we are trained to always
think of what we will do next. For example, in surgery we're
trained to know what to do if we encounter unexpected bleeding.
In reproduction, however, there are scenarios for which there
isn't a next step. If a woman no longer has good quality eggs
as a consequence of age, none of our therapies with her eggs
will be successful at changing that reality. Although it is
always easier to just repeat another cycle of treatment, we
as physicians have to have the courage to tell a couple to
stop that treatment. Our patients have told us that they would
rather know up front if they aren't going to be successful.
This way, they won't invest their time money and emotional
energy into a futile process. It is never pleasant or easy
to deliver bad news, but it is our obligation sometimes and
it is the only ethical way to practice medicine. Other options
to achieve becoming parents with donor eggs, or through adoption
can then be realistically considered.
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